What do we do?
Amongst the many roles of Sickle Cell Society Ireland in caring for those affected by sickle cell are:
Patient, parent and carer support advice
Education & Training
Partnerships (PayPal Europe, Sickle Cell Society UK, Irish blood Transfusion Services, Pan European Sickle Cell Aliance – currently president, Global sickle cell Disease Network, World Wide Initiative on the Social Studies of hemoglobinopathies, Centre for Disease Control US, Prof Dyson of DMU Leicester UK)
Who we work with
Individuals living with SCD;
Family members and friends of individuals living with SCD;
Health care providers, both medical and allied health professionals;
Community representatives, including day care workers, teachers, employers and others;
Individuals living with SCD Traits and their families.
Individuals living with sickle cell and their families/friends, who directly benefit from SCSI’s work;
Health care providers, including both medical and allied health professionals, whose work impacts on the lives and well-being of people living with or affected by sickle cell, e.g. Irish Blood Transfusion Services (St. James’s Hospital); Crumlin Children’s Hospital; Royal College of Surgeons Ireland; and other hospitals in various counties in Ireland;
Community representatives, including daycare workers, school teachers, employers and others;
Statutory agencies who impact on the lives of people living with sickle cell and their families, in particular the HSE; the Department of Health; the Department of Social Protection;
Non-Governmental Organisations (NGOs) whose work directly impact on the lives and well-being of people affected by sickle cell;
Sponsors: funders and donors; and
SCSI directors, project managers, and team members.
SCSI’s external partners and groups who advocate for the rights of people living with cell, especially Sickle Cell Society UK; PESCA; Global Sickle Disease Network (GSCDN);