16th June 2018 at 5:00 pm Castleknock, County Dublin, Ireland
HOW CAN YOU HELP US
WE HELP FAMILIES AND PEOPLE AFFECTED BY SICKLE CELL IN IRELAND
In order to establish a structured support services for families affected by sickle cell in Ireland, the Sickle cell Society Ireland launched a support service for Crumlin Children’s Hospital which benefits all families attending Crumlin Children’s Hospital.
By becoming a member of SCSI you can make a difference in caring for people affected by Sickle Cell in Ireland
A BRIEF INTRODUCTION
Sickle Cell Society Ireland (SCSI) is the Official Umbrella organisation for all sickle cell support groups in Ireland. It is a parent led NGO Organisation working at local, regional, national and European Union level. SCSI works in partnership with Sickle Cell Society UK, Pan European Sickle Cell Alliance (PESCA ), Global Sickle Disease Network (GSCDN), Worldwide Initiative on the Social Study of Haemoglobinopathies (WISSH), Unit for the Social Study of Thalassaemia and Sickle Cell at De Montfort University, UK, Irish Blood Transfusion Services and the Children’s Hospital in Crumlin.
By becoming a member of SCSI you can make a difference in caring for people affected by Sickle Cell in Ireland.
HOW CAN YOU HELP US
WHAT PEOPLE OVER THE WORLD ARE SAYING
We can tell the society has made huge impact on our GP trainee students since their involvement in delivering the EPC module where they come to tell their stories and experiences of the health care system weather negative or positive. This impact is reflected on students responses to exam questions.
Dr. Jane Uygur
Royal College of Surgeons Ireland GP Lecturer
I believe you are the driving engine of sickle cell in Ireland.
Don’t stop, continue to make this voice heard
Dr. Corrina McMahon
Consultant Hematologist OLCHC
SICKLE CELL SOCIETY IRELAND NEWS
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